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Showing posts from October, 2013

HELLO WORLD

Hi there,  the name is Faith Njahira, recent graduate of Special needs education majoring in Learning Difficulties and English at the great (yes I just called it great)Kenyatta University. Until recently I was living in denial of being with muscular dystrophy   (well, for a long time I din't have a name for my condition but most of my life I have been aware that I am different). In becoming part of this blog I am hoping to share my life experiences as a person living with Muscular Dystrophy which I will be abbreviating as MD. This is a rather new term and a mouthful for most of you but hopefully in the end you will be more informed and aware and even sensitive yet no longer feeling pity for those of us that God chose to fight this battle with MD. For my friends and family out there who might find this all a bit too much to wrap your heads around, do feel free to engage me with questions that may come into your mind. Cheers!! Col 3:23 In whatever you do, do it heartily as thou
1. Frequent falls because lack of balance. I know you must have been walking on a path sometime when something, a protruding rock, a loose pebble, a banana peel, mango seed or perhaps a missed step threw you off step. Walking when absentminded Or when walking on our muddy kenyan roads and you lost your balance. But did you fall? My bet would be that you didn't, you were able to recover your balan ce and keep from falling. When you have MD, all the above things will have you losing your balance and on the ground in a matter of seconds. Funny thing is that, when you are up again, at times you can't see what it is that threw you to the ground!! Bottom line, if you have MD the fear of falling might be your greatest fear.

Uncovering the mystery of Muscular dystrophy (MD)

TYPES OF MUSCULAR DYSTROPHY DISCLAIMER: Despite being a long piece with a lot of medical jargon that you might be seeing for the first time, do read on and get informed!!  What Is Muscular Dystrophy? Muscular dystrophy (MD) is a group of inherited diseases in which the muscles that control movement (called voluntary muscles) progressively weaken. In some forms of this disease, the heart and other organs are also affected. There are nine major forms of muscular dystrophy: • Myotonic • Duchenne • Becker • Limb-girdle • Facioscapulohumeral • Congenital • Oculopharyngeal • Distal • Emery-Dreifuss Muscular dystrophy can appear in infancy up to middle age or later, and its form and severity are determined in part by the age at which it occurs. Some types of muscular dystrophy affect only males; some people with MD enjoy a normal life span with mild symptoms that progress very slowly; others experience swift and severe muscle weakness and wasting, dy