Unsure temperatures The last week or so, weather in Nairobi has been confused, bright and shinny one minute,  freezing the next. The warm episodes could last all eternity if it were up to me but then again, that must be why God is not human(read selfish). The 12th of June was one such confused day, it was so bright in the morning I was sure I'd get  rid of my layers of jackets at some point but it remained stubbornly chilly. Fastforward to lunch time, I toyed with my food as I enjoyed my one hour break from sitting down and headed back to my desk. Habits, the dive I had requested a meet with a colleague and when they were settled in after lunch I headed to their office. To be sure I don't miss the seat, I've developed the habit of holding onto the arms of the seat before easing onto it. Let's just say on this day I missed the right chair-arm and boy did I dive! Since my hands were behind me I couldn't use the to break the fall and my chin had to do it for me. Hav

Social media alone cannot be enough to create awareness, hence we need mainstream media. General advocacy alone may not make the challenges of living with a progressive muscle degenerative condition well understood so once in a while we resort to self advocacy ( putting yourself on a pedestal) so that the lives and experiences of other people can be easier than yours. Questions are welcome :-)